- Lewis Bartelle
- Mar 26
Updated: Apr 2
Embracing Your New Reality
Hey everyone, Lewis here.
I want to talk about the part of stroke recovery that happens not in the physical therapy room but deep inside your head and your heart. The part that does not show up on a progress chart or get celebrated at a follow up appointment. The part that is invisible to almost everyone around you — and yet shapes every single day of this journey more than almost anything else.
The emotional life after a stroke is a turbulent ride. Non-stop, intense, unpredictable — and completely normal.
I know that might not feel reassuring right now. But I mean it. Every overwhelming feeling you are carrying, every moment where the emotions seem completely out of proportion to what just happened in the room — your brain and your heart are doing exactly what they are supposed to do when something enormous happens to you. They are processing. They are trying to make sense of an event that fundamentally shattered your world.
The problem is nobody gave you a map for this part of the journey. Nobody sat down with you before discharge and said — here is what the emotional road looks like, here are the stops you are going to make, here is why you cannot skip any of them.
That is what this article is. Consider it your map.
The Stops on the Ride
These are the emotional stops I made on my own ride — and that most survivors make on theirs. They do not always happen in this exact order and they do not always announce themselves clearly. But they are coming. And knowing what they are makes them survivable.
Shock and Denial
This cannot be happening to me.
This is your brain’s necessary shield — protecting itself from the full magnitude of what just occurred.
On October 7th 2012 I went from planning a Sunday morning pancake breakfast with my daughters to waking up in a hospital six weeks later with an eight inch scar on my skull and a body that would not cooperate with a single thing I asked it to do. The shock of that is not something the mind processes all at once. It cannot. So it protects you — wraps you in a layer of disbelief that gives you breathing room while the reality slowly becomes real.
That shield is necessary. But it is temporary. You cannot stay in denial forever because denial burns energy you need for recovery. At some point you have to face the truth of where you are — and that facing, as hard as it is, is where the real work begins.
Anger and Frustration
Why me? Why is this so hard? This is not fair.
This anger is real and it is valid. It is often directed at yourself, your body, the stroke, the universe, or the sheer injustice of a situation you did not choose and did not deserve. It is exhausting. It can come out sideways at people who do not deserve it. And it can make you feel like you are losing control of yourself on top of everything else you are already dealing with.
But here is what I want you to understand about this anger: it is powerful. It is fuel. The key is acknowledging it without letting it consume you — and eventually learning to redirect it. That energy that wants to rage at what the stroke took from you? That is the same energy that gets channeled into the Hustle. Into the grinding daily work of building new neural pathways. Into becoming the Gladiator.
The anger is not your enemy. Unexamined and unmanaged anger is. There is a difference.
Deep Sadness and Loneliness
This is where the grief hits. Full, heavy, unavoidable grief.
You are mourning the life you had. The career you built. The abilities you took for granted. The future you planned. The version of yourself you spent years becoming. All of it looks different now and some of it is genuinely gone — and the sadness of that is not self pity. It is the honest, human response to a real and significant loss.
The isolation that comes with this stage can feel crushing even when you are surrounded by people who love you. Because they cannot fully feel what you are feeling. They have not lost what you have lost. And that gap — between being loved and being truly understood — is one of the loneliest places on this entire journey.
This is exactly why community matters so much. Why finding people who have walked this path — who nod when you describe something you thought was only happening to you — changes everything. Come find us in the Beyond The Shatter community on Facebook. You should not be sitting in this particular kind of loneliness alone.
You Cannot Skip These Stops
I want to say this as directly and as lovingly as I can.
You cannot bury these feelings and expect to move past them. Trying to perform gratitude over unprocessed grief does not make you stronger — it makes you stuck.
The emotions you refuse to feel do not disappear. They go underground. And underground they become the anchor that weighs down every effort you make toward forward movement.
This is what therapists call trauma processing — the work of making sense of a traumatic event and integrating it into your story rather than being controlled by it. You do not have to be in a therapy room to do this work. But you do have to be honest. You have to let yourself feel what is actually there.
Name it. Own it. Move through it.
That is not weakness. That is the bravest, most therapeutically sound thing you can do on this road. And it is the foundation on which everything else — the goals, the hustle, the progress — gets built.
Why Acceptance Is Not a Destination
The word acceptance gets used a lot in stroke recovery — and almost always gets misunderstood.
I used to think acceptance meant throwing my hands up and saying — oh well, I guess this is my life now. That felt like surrender. Like giving the stroke the last word. I wanted no part of it.
But that is not what acceptance is.
Acceptance is not passive. It is not resignation. It is not giving up.
Acceptance is the most active thing you can do.
It is the courageous, daily choice to look at your reality exactly as it is today — the limitations, the struggles, the unexpected challenges — and say clearly: okay. This is where I am. Now how do I move forward from here?
It is trading the draining, exhausting energy of fighting against your reality for the powerful, focused energy of building within it. It is stopping the war with what is — so you can start winning the fight for what can be.
Acceptance is not a destination you arrive at once and never revisit. It is a practice. Some days it comes easily. Some days you have to choose it deliberately, multiple times, before noon. That is completely normal. What matters is that you keep choosing it.
Moving Forward — Three Things That Actually Help
So how do you manage the turbulent ride and start building your new normal? Here is what worked for me and what I share with every survivor I sit with through the Army of Warriors program:
1. Acknowledge and name the emotion.
Do not just feel angry — say it out loud. I am angry that I cannot do this simple task right now. Name it specifically. Naming an emotion does something real in the brain — it activates the prefrontal cortex and reduces the intensity of the feeling. It gives you a handle on something that felt uncontrollable. This is trauma processing in its simplest form and it works.
2. Give it a time limit.
If you are having a sad day — and you will have them — give the sadness its time. Tell yourself you can sit in it until 4pm. Then when 4pm comes, redirect that energy into one small deliberate action. Drink a glass of water. Make one movement. Send one text to someone who gets it. This is not about suppressing the emotion. It is about choosing when you are done being driven by it. That reclaiming of choice — even a small one — matters enormously.
3. Focus on right now.
The only thing you can truly control is your effort in this moment. Not where you will be in a year. Not whether you will ever fully recover. Not what you lost or what might still be ahead. Just — what is the next rep. The next step. The next word. Living in the now is not spiritual advice. It is a practical strategy for keeping the future from crushing you before you have had a chance to build it.
You Are Not Broken
I want to close with something I need you to really hear.
You are not broken. You are recalibrating. There is a profound difference between those two things and it matters more than I can fully express in a single article.
A broken thing cannot be fixed. A recalibrating thing is in the process of finding its new alignment. Your brain is rewiring. Your heart is processing. Your spirit is doing the hard, slow, unglamorous work of integrating something enormous into a life that is still worth living — and will be more than worth living on the other side of this.
Every emotion you feel on this ride is part of that process. Every hard day is the work happening. Every moment you choose to name it and own it and keep moving anyway — that is you building something the stroke cannot touch.
God put something in you that is stronger than what tried to take you out. I have seen it in myself over thirteen plus years and I see it in every survivor who walks through the doors of this community.
If you need the complete roadmap for the emotional and practical journey of stroke recovery — Beyond Shattered is on Amazon and it was written for exactly where you are right now. Every chapter was built for the person who needed a guide and could not find one.
You are strong enough for this ride. I promise.
— Lewis
- Lewis Bartelle
- Mar 25
Updated: 12 hours ago
Get Out of Your Own Way
Hey friends, Lewis here
I want to say something today that comes from a place of complete love and zero judgment — because I have been on both sides of this conversation and I know exactly how it feels.
Some of us are playing the stroke card. And it is time to talk about it.
Some of us are playing the stroke card. And it is time to talk about it.
Some of us are playing the stroke card. And it is time to talk about it.
Now before I go any further let me be clear about something. I am here for every single survivor on this journey. The ones who are grinding every day and the ones who are struggling to find the motivation to start. I have nothing but love and respect for anyone who is still in this fight — because just surviving a stroke and waking up every morning to face what comes after it takes a kind of courage most people will never be asked to find.
But I would not be doing my job — and I would not be your friend — if I did not say this out loud:
Some of us are using our stroke as a reason to stop trying. And that is the one thing I cannot get behind.
The Stroke Card — What It Actually Looks Like
The stroke card is not always dramatic. It does not always look like someone throwing their hands up and declaring they are done. Most of the time it is quieter than that. It sounds like this:
I can’t do that because of my stroke.
That’s too hard for me so I won’t even try.
Poor me. What’s the point.
It is the slow, gradual surrender to the idea that your limitations are permanent. That the ceiling you can see right now is the ceiling that there is permanently . That trying = falling/failing and that = DONT TRY. And once that thinking takes root and you stop challenging it — it becomes your reality. Not because it is true. Because you told yourself it was true often enough that your brain stopped looking for another way.
Here is a quote I love and carry with me: “Whether you think you can or think you can’t — you are right.” That is not just motivation poster language. That is neuroscience. What you tell yourself shapes your narrative. Your narrative shapes your effort. Your effort shapes your outcome. It starts in the mind every single time.
I See You — And I Want More For You
I want to be honest about something personal here.
It is harder for me to watch a survivor give little to no effort on their recovery than almost anything else on this journey. Not because I am judging them — but because I know what is possible on the other side of deciding to push. I know what the brain is capable of when you give it the consistent, effortful stimulus it needs to rebuild. I know what happens when you get out of your own way.
And I know what gets left on the table when you don’t.
I spent six weeks in a coma. Nine months in inpatient rehab. Three and a half years in a wheelchair. I shuffled ten agonizing feet in a pink gait belt with my daughters waiting at the end of the hall. There were days — plenty of them — when my body was screaming at me to stop and my mind wanted to agree.
But here is what I kept coming back to: how bad do you want this?
Because that question — answered honestly — is where everything begins.
The Warrior Scale — Which Level Are You At?
I believe Warriors operate on a scale of one to ten. And every single survivor reading this is already a Warrior — just by showing up, just by still being in this fight, just by getting out of bed and facing another day of this incredibly hard new normal. That baseline is real and it matters and DO NOT let anyone take it from you.
But there is a difference between surviving the arena and owning it.
Think about what it actually takes just to function on a daily basis with stroke limitations. The energy required to put on a smile and act like everything is fine while you are managing fatigue, double vision, dysarthria, ataxia… and everything else living in the unseen 80%. That is warrior level work and most people around you have no idea it is even happening.
So the question is not whether you are a Warrior. You already are.
The question is — are you going to stay at a level one or two because the stroke card is easier to play? Or are you going to dig into what is actually in you and find out how far up that scale you can go?
That is where Warriors become Gladiators.
A Gladiator does not just endure the arena. They master it. They are defined not by the stroke that brought them there but by the ferocity of the comeback. The blood, sweat, and tears it takes to rise up and — pardon my language — seriously kick that stroke’s ass. To look at the life you have now and refuse to let this be the whole story.
Get Out of Your Own Way
Here is the truth about limitations that took me years to fully understand.
Some limitations are real and they deserve to be honored and accommodated. Owning your disability — naming it, understanding it, working with it — is part of the journey and I talk about that throughout The Word. Pain is just weakness leaving the body, and there is a difference between the productive discomfort of pushing your limits and ignoring genuine signals from your body.
But a lot of what we call limitations are actually just untested assumptions. Things we decided were impossible before we tried. Ceilings we built in our own minds and then stopped looking up at.
The brain does not stop building new pathways because you hit a hard day. It stops building them when you stop giving it the stimulus to work with. Neuroplasticity is always available to you — but only you can activate it.
Consistency is the currency of recovery and you are the one holding the wallet.
So try. And fail. And try again and fail less. And try again and stumble. And try again and own it.
That chain — that persistent refusal to let the stroke have the last word — is what progress is made of. Not the dramatic breakthroughs. The quiet, daily, stubborn decision to try one more time.
I go deep on this in Beyond Shattered — the full mindset framework, the tools, and the honest account of what choosing ownership over victimhood actually looks like across years of recovery. If you need the complete roadmap it is on Amazon and it was built for exactly this moment.
The Choice Is Yours
I want to close with this because I mean every word of it.
I love you. All of you — the ones who are grinding and the ones who are stuck and the ones who are somewhere in between on any given day. This journey is hard in ways most people will never understand and you deserve grace and patience and a community that has your back.
And — you deserve someone who believes in you enough to tell you the truth.
The stroke card is a trap. It feels like protection but it is a ceiling. And you were not built for ceilings.
Get out of your own way. Put your mind to it. Do the work. Show the stroke who is boss.
How bad do you want this?
Because I promise you — the answer to that question, chosen deliberately and acted on consistently — changes everything.
Come find us in the Beyond The Shatter community on Facebook where survivors who are choosing to push show up for each other every single day.
And if you are ready to let your comeback story inspire someone else who is right where you were — the Army of Warriors program at BeyondtheShatter.com is waiting for you. Always free. Always yours.
— Lewis
- Lewis Bartelle
- Mar 22
Updated: Apr 2
Your Complete Guide to Dysarthria Communication
Hey friends, Lewis here.
I want to talk about something that sits at the very core of what makes us human — the simple, profound need to be understood.
When my stroke hit, my mind was initially locked on the big visible challenges. Learning to walk again. Figuring out how to get through a day. Nine months in inpatient rehab, working my way from a pink gait belt and a walker with arm stilts back to something resembling the life I knew. Those were the battles everyone could see.
But as I started to find my footing, something else became impossible to ignore. Something that did not show up on a scan or a progress chart but affected the very core of who I was.
The way I spoke had completely changed.
Words that once came effortlessly — rapid fire, full of jokes and stories — now came out slow, slurred, and sometimes strained. Simple sentences required effort I had never had to think about before. And this new reality had a name I had to learn to say out loud.
Dysarthria.
I know firsthand how isolating this feels. The frustration of having a completely clear thought in your mind and an unclear sound coming out of your mouth is a specific, relentless kind of hard. But I want you to hear this clearly: you are not alone in it. And communication with dysarthria is a two-way street — which means there are real, practical things both speakers and listeners can do to make it work better. That is what this article is about.
My Speech, My Story — Understanding the Challenge
When my doctors first explained dysarthria to me it felt like a heavy clinical term, but the reality underneath it is actually straightforward. Dysarthria is a motor speech disorder. The damage from my stroke affected the part of my nervous system that controls the muscles I use to speak — my tongue, lips, jaw, and breathing. The control panel for producing clear speech got damaged. That is it.
This does not mean I forgot my words or lost the ability to form sentences. The thoughts are there. The intelligence is there. The personality — trust me — is still very much there.
But here is something I want to add that the clinical definition leaves out, because it is important and it is real. For me personally, sometimes thoughts and words get mixed up on the way out. I will mumble out something and then realize it made no sense — and half the time it was hidden behind the slurring anyway so people probably did not even catch it. That disconnect between what I meant to say and what actually came out is its own layer of frustration on top of everything else.
The signs look different for everyone but for me the main ones were:
Slow, slurred words. I often felt like my mouth simply could not move fast enough to keep up with my thoughts. Like a car with a powerful engine and a transmission that would not cooperate.
Breathy, raspy voice and volume control issues. My voice would come out strained and hard to project. I have had more people than I can count assume I was yelling when I was genuinely just trying to speak loud enough to be heard across a table.
Here is something that helped me when I first got this diagnosis: between 30 and 40 percent of stroke survivors experience ranging dysarthria symptoms at some point. That is a significant number of people navigating this same daily challenge. Knowing that did not make it easier exactly — but it reminded me that what I was going through, while deeply personal, was not something I had to figure out alone.
If the emotional weight of living with an invisible symptom like this is something you are carrying right now, go read my article on The Iceberg of Recovery — The Unseen 80%. It covers everything that lives below the surface that the world does not see, including the daily invisible fights that dysarthria is a part of.
The Social Struggle — Assumptions and the Silent Nod
Here is the honest truth about the hardest part of living with dysarthria. It is called the "silent nod".
You know exactly what I am talking about. That moment when you are speaking and the person across from you smiles and nods along as if they understood every word, when it is completely clear they did not. They do not want to make you feel uncomfortable. They do not want to slow things down. So they nod. And the real meaning of what you were trying to say disappears entirely.
I have been through the drive-through more times than I can count and had them guess my order rather than ask me to repeat it — and gotten it completely wrong. That is a small thing in the grand scheme. But small things add up. And each one is a quiet reminder that the world tends to prioritize speed and comfort over genuine understanding.
Here is what I want the silent nodders of the world to know: asking me to repeat myself is not rude. It is respect. It tells me my words matter enough to actually hear. That is all I am asking for.
The Communication Toolkit — Both Sides of the Conversation
Communication with dysarthria works best when both the speaker and the listener show up with intention. Here is the practical toolkit for both sides:
For Me — The Speaker:
Pace myself deliberately.
This is the most important one. I consciously slow down and give my mouth time to catch up with my brain. A deliberate pause between phrases improves clarity more than almost anything else. It is tough when the conversation is moving fast or someone is waiting on me — but rushing always makes it worse. Slow is smooth and smooth is understood.
Use gestures — play a little charades.
I fully embrace body language. Hands, pointing, facial expressions — all of it adds context that my voice sometimes cannot carry alone. Do not be embarrassed by this. It works. Use it.
Manage breath and signal the pause.
Dysarthria affects breath control, and I constantly sound like I am running out of air mid-sentence. I have learned to make a clear physical signal — a hand gesture or a held finger — that says I am not finished, I am just catching my breath. That one habit alone has saved countless conversations from going sideways when someone jumped in thinking I was done.
Own the repeat.
I have learned to say clearly — let me say that again — when I can tell something did not land. No apology, no embarrassment. Just a calm reset. It is always better than letting an assumption take root and grow into a misunderstanding.
For You — The Listener
Patience is not optional — it is the whole game.
Create a calm environment for the conversation. Remove distractions where you can. Do not rush, do not interrupt, and please — do not finish our sentences for us. Even when you think you know where we are headed. Let us get there.
The 3 to 4 second rule.
This one is specific and it matters enormously. When a dysarthria speaker pauses to breathe, that pause looks like the end of a thought. It is not always. Give us a full three to four second count before you respond. That window — small as it sounds — is often the difference between a complete thought and a cut-off one. Rushing in breaks the focused speech pattern we are working incredibly hard to maintain.
Ask, do not pretend.
I promise — I would far rather you ask me to repeat something than nod along and miss the point entirely. A simple “can you say that again?” is one of the most respectful things you can offer someone with dysarthria. It says: what you are saying matters enough to actually hear.
Make eye contact and read the whole picture.
Eye contact lets you pick up on facial expressions and body language that carry meaning my voice sometimes cannot. I had a boss who used to quietly follow my lip movements during conversations — fully present, fully paying attention. That level of care made an enormous difference and I have never forgotten it. Be that person for someone.
Try other channels when needed.
If a conversation is genuinely not getting through, suggest a different mode without making it awkward. Notes app on the phone, pen and paper, a quick text follow-up — these are tools, not failures. They make it a practical challenge to solve together rather than an uncomfortable standoff.
Your Voice Is Still Yours
My journey with dysarthria has taught me something I want to leave you with today.
My voice is a gift. It sounds different than it used to. It requires more effort from me and more patience from the people around me. Some days it cooperates and some days it absolutely does not — and on those days I lean on every tool in this toolkit and remind myself that the thought behind the words is still completely intact.
What I went through with speech is one of the reasons I built "The Word" and the Army of Warriors program at BeyondtheShatter.com. Because dysarthria is one of the most isolating parts of stroke recovery, and survivors living with it deserve a dedicated space to be heard — literally and figuratively.
If you have a story worth telling, we will help you tell it. The program is completely free and your voice — however it sounds — belongs in it. Come find us.
And if you are carrying the full weight of stroke recovery and need the complete roadmap — from the emotional journey through the practical tools — Beyond Shattered is on Amazon and it was written for exactly where you are right now.
The silent nod stops here. You deserve to be understood.
— Lewis
